venture is part of the adVenture

One week from today! Seven days! Only four more nights in my own cozy bed then a few nights in a hotel bed (till I’m settled in with my friends at their temporary home). Only one more ‘garbage day’ here (Babe, did you remember to take the trash down?). Four more showers here. One more Ortho-Bionomy therapy…one more chiro treatment…four more times to see the dogs eat their ‘supper’. It’s just for a little while. A few weeks. Maybe 10…Oh, no! How am I gonna do this? (sad face, even weepy)

There was a time, back in another day, when I loved to travel. Venturing on to new adVentures was my style. Or used to be. For the past 15 years, in many ways, I’ve not been much of myself, just not felt comfy in this fibromyalgia/RA/chronic fatigued skin. There’s been a new ‘norm’ in my life. Even at that it’s felt like all my days were like a humongous box of chocolates! And home is where I preferred to be.

Autoimmune dis-ease, or any illness, has a way of messing with your life…and its plans. So, I am extremely blessed to have this opportunity to hang out in a clinic where  ‘chronically-in-pain’ people go to experience wellness. Some come from all over the world to The Neurologic Relief Center. Some wait years to afford to go, while in unbearable pain, knowing there’s a place of hope in the unlikely state of Arkansas. I know this because there’s a woman who arrived in her wheelchair of five years (CRPS), the last two years knowing where she needed to go but had to wait for the funds to make it possible.  Recently, she walked out of there after ten weeks (gave her wheelchair away just three weeks into treatment)! Praise the Lord for these stories and there’s so many more like hers.

I’m not in a wheelchair. Now now. I did have to use one almost six years ago when inflammation and Baker’s cyst caused my right knee to blow up like a small basketball. That crazy localized pain allowed me to ignore the level 9.9 pain I was in all over my body. Around that time I was given a beautiful Buzz Around scooter (I didn’t necessarily want it, lol) and that was how I got from bed to bathroom to kitchen and back…for several months. Inside my head and heart, I was not ready for that life. Really, who is?

The fight to get well eventually settled into a quest to manage pain…so I could function. And I have. If you didn’t know me and couldn’t see my hands or how life is from evening till around noon when pills, salves and supplements have kicked into gear…and you just saw me during the afternoon hours of a ‘good day’ at 5-7 pain levels during low activity, you might say ‘you look great!’  I know cuz that’s what friends say when they see me.

Enough of me from then till now. Onto meeting my future healthier self. I’m gonna say it begins now since hope is here, packing needs to be done and bye-byes need to be said.

And the (ad)venture begins! Blog ya soon!

Journey with me on hinds’ feet, trekkin’ on high places! (Habakkuk 3:19)

PS – If you haven’t read Hinds Feet on High Places by Hannah Hurnard, pls do!

 

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countin’ down to better health

Last day of April 2018

Dental appointment today, check! Ortho-Bionomy tomorrow will be another check! Chiro and haircut Wednesday, check again. Then one more dental appointment Thursday and it’ll be T minus one week till I leave my comfy-cozy home, dogs and family to embark on an adventure of my lifetime.

Noooo, I’m not taking off on a bucket list long-awaited vacation. But ya know what? I truly believe that for the first time in 15 years, the thought of a vacation that includes traveling will actually excite me again. Packing, planning, committing and socializing. Potential crowds and unfamiliar furniture. Whether verbs or nouns, these are just a few words that cause anxiety for someone in chronic pain, fatigue or one of many inflammatory causing autoimmune dis-eases. I like to spell it that way because my body’s ‘ease’ has been ‘dissed’! And that is why the next leg of my venture aims due west, crosses the long state of Tennessee, to Fayetteville, Arkansas. Where hope awaits…at The Neurologic Relief Center (seeingyouwell.com).

As mentioned last week, my friend and her daughter are already there (six weeks now) and seeing great results. The videos and stories online are so encouraging as well. As part of my prep,  I am reading Dr. Katinka’s books: Taming the Beast, (A Guide for Conquering Fibromyalgia) and Putting Out the Fire, (New Hope for RSD/CRPS). Taming the Beast is the very best and most comprehensive information I’ve ever found on Fibromyalgia. I am feeling more prepared for the coming weeks/months as I devour all that she has to say.

Many friends and family have asked to get updates on my progress, so it was time to resurrect the ole blog.  If you’re reading this, I hope you’ll check back to share in my progress. Unfortunately, most people know of someone who suffers with chronic pain/fibromyalgia/arthritis/CRPS, etc – since fibromyalgia alone may affect 4 to 5 percent of the population, more women than men.

I’ve been on this very personal quest to get better/feel better/be well/know answers for a long time. This blog was originally intended to sort of journal my story, hoping to share insight as I waded through the plethora of advice and answers handed, or sent, to me by well meaning friends and practitioners over the years. I could fill a large closet (oh yeah, I have) with the pieces of equipment (I call them toys) and boxes of bottles and jars of all that ‘is helping others’! Already being in the wellness industry, providing others all over the world with some great products, puts us in touch with many like-minded people. I’ve got news for some people: since we are individuals with varying degrees of illness and dis-ease, what works for some will not work for everyone…there is no panacea out there…even and especially in ‘alternative’ medicine.

So tune in next week…when I will share a bit of the interesting history of fibromyalgia as I’ve learned it from Dr. Katinka.

Onto getting ready and getting well…blog ya soon!

Let’s journey together on hinds’ feet…treadin’ on high places! (Habakkuk 3:19)

 

 

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have blog, will write…again

Yesterday my therapist, Alex, (well, Ortho-Bionomy practitioner) said ‘you should do a blog, journal your journey’ (back to good health). I told her, well I am a writer and I have a blog!

Sooooo, I’m back. Why did I ever take a 3 yr break? (maybe nobody out there even cares lol, but it’s a chance ya take when ya blog) No seriously, if one person gets one thing outta my words on these pages, it’ll be worth it. And how many bloggers might agree we write for ourselves and maybe for loved ones…at the very least, it’s good therapy!

My (un)Healthy Journey has done some crazy loop-dee loops as well as taken sharp turns around jagged rocks; I have hidden in caves, it seems, and there have been days I’ve wanted to dance and shout from the mountain it felt I’d just climbed. But always, and even in the valley where I’ve felt that nobody gets what my body is doing to me, I know that Jesus hangs out with me. That is the greatest comfort.

Okay, so next month I will venture out – to Fayetteville, Arkansas, to the Neurologic Relief Center, where people have come from all over the world to get their lives back again! I am excited to go and get started, yet it was not an easy decision. I have become such a home-body, a lot because of pain. Also my husband and I do most things together and we don’t like to leave our dogs for too long. He will take me there and stay a few days, helping me get furniture and things I need, and go at least the first day to meet the Dr’s and therapists. And he won’t just wave bye-bye for the duration…he will come back and forth as much as possible.

My friend is out there with her daughter who is being treated and they’ve rented a home where I can stay with them for the first couple of weeks. They like you to commit to two weeks and then you will know, and the Dr’s will know, if you’re on a track to wellness; and then you commit to finish the program if you are. After watching videos and reading Dr Katinka’s books, Kevin and I both knew it was the right thing to do for us.

Nearly 17 years of arthritis and fibromyalgia (and thyroid disease) can beat you down. Our decision to use primarily alternative or natural treatments has been very enlightening, to say the least, but good. So much to say on that huge part of my trek, and I will share a bit here and there. Hopefully it can be of help to someone.

Lists and thoughts and appointments and questions…wow, this is no small endeavor! My last few weeks here is spent having my yearly eye exam so I can get more contacts, finishing up some dental work, continuing with Ortho-Bionomy, massage and chiropractic (my pain management, along with my arsenal of supplements, lotions and potions)…I’m already warning my therapists there’s a good chance I won’t see them as often when I get back! I love my healthcare team. There’s been many over the years, in FL, and now here in NC; I’ve lost some of the best for many reasons – death, having babies, relocating their practice or home, and some because I needed to change up some things. They’ve all become my friends, some quite close. Hard not to when they care so much and you see them almost weekly or even more often.

Onto getting ready and getting well…blog to ya soon!

I hope you’ll journey with me on hinds’ feet…treadin’ on high places! (Habakkuk 3:19)

 

 

 

 

 

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When Even Your Messy Bun Looks Bad

With no time, energy or strength for a shampoo this morning, it was gonna be a cute little messy bun kind of a day…for church. After a few attempts at a usually acceptable updo, I had to settle for less. Living in Asheville is cool and I love that most anything I wear…just works. And hairstyles often look like…’well that just happened’!

But I couldn’t help thinking that we’re still fairly new to this church and the only one there (besides my family) who knows why I might arrive a little disheveled is my doctor who attends there. And I was reminded of a great video description, written and spoken by the woman who came up with the Spoon Theory, who is herself…a Spoonie.  I’d already used up at least five ‘spoons’ showering, dressing and raising my arms several times to make a bedhead look okay even in this town.

So I hope you’ll watch this for greater awareness of lives around you who may suffer with ‘silent’ illnesses. I don’t have lupus like Christine. And while fibromyalgia and RA have defined my physical abilities for several years, it’s been my faith in God that has sustained me. Calling on the Name of Jesus has brought me through many dark and scary nights to His mercies that are new every morning!

Check out:

http://www.thedailymigraine.com/blog/2014/6/25/are-you-a-spoonie

And then walk with me on hinds’ feet…treadin’ on high places! (Habakkuk 3:19)

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coming in from the cold

I’m loving this really cold weather…especially while in front of the fireplace! Or when I go from house to the car in the garage and then get dropped off in front of the store. No, really, this season in western NC has been comforting and memorable as it’s been many years since growing up in the seasons of Pennsylvania and then many more in Florida. It’s amusing to watch my husband’s and son’s reactions to ‘a lot’ of snow….when it’s just a few flurries.

So the thought of ‘coming in from the cold’ brings random ideas to mind. Not just about low temps and cozy scarves, icicles and warm gloves.

I think of scripture that relates to our spiritual sense of comfort. The NKJV of Proverbs 18:10 says ‘The name of the LORD is a strong tower; the righteous run to it and are safe.’ The NIV says this tower is ‘fortified’. Wow, who wouldn’t want to be in a strong, fortified tower when the storms of life come? Whether emotional or physical, don’t we all just want to feel safe and secure, looking out the ‘windows’ of our souls for help on the horizon?

Talking and texting with a couple of close friends recently, I am encouraged and blessed that these BFF’s have the faith and desire to cling to God in every aspect of life…every day.

It is my prayer that everyone can come in from the cold. Thoughts of the homeless as I cuddle under warm quilts…breaks my heart, causing me to cry out on their behalf. May we all find our way in from the harsh realities of this world…to that strong tower of the Lord. His arms are outstretched willing to enfold us in his comfort and care. Run with me!

And then walk with hinds’ feet…treadin’ on high places! (Habakkuk 3:19)

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Popcorn isn’t just for movie night

popcorn

Sure wish I knew where that came from, haha! To be honest, I do know Where my inspiration comes from. Not always…but sometimes I get the title first and then the rest comes as I obediently yield to my keyboard. Other times many words spill out onto the screen and then I ponder a fitting title.

So in my home popcorn truly is not just for movie night. We like popcorn (a lot!) and really almost any given night can be movie night. Movies and TV are my husband’s favorite way to wind down after a long work day. Or any day for that matter! We’ve had friends over and end up just watching trailers for hours….also a good opportunity to pop those yummy kernels (on the stove, never microwaved).

Creatures of habit – even if we don’t want to be – certain days are associated with specific activities or emotions. Besides the obvious Friday or Saturday date (dinner, movie and popcorn) or party time, Sunday church and/or football, Monday back-to-work blues…what triggers do you experience as the calendar rolls around day after day, week after week? I suppose fixed schedules are more prone to this. I haven’t been on a fixed schedule for many years and I absolutely love it…and have a need for it! I realize that some people need consistency in their comfort zone and certain jobs demand it; I get that. But I’m more of a ‘please don’t make me commit’ type of person. Seriously, when that daily question comes from my husband about the dinner menu (btw, I prefer eating ‘supper’) I almost cringe. Especially after lunch and my tummy is satisfied. Man, let’s deal with that when the time comes, right? Even when it comes to setting up a doctor appointment or making plans with friends, I’d much rather be impromptu and strike when the feeling hits me. But, no, I wasn’t always this way.

I do believe this comes after 10 years of autoimmune disease symptoms that have kept me up many nights, making me want to sleep most of the morning while my husband is enjoying his second cup of coffee and his work day is nearly half over. I have been truly blessed in that his office is here at home and I haven’t worked outside the home for many years. Comes in handy when battling illness. This has caused me to be extremely sympathetic to people who do need to work while not feeling well or in acute and chronic pain. My heart goes out and I pray for them. Sleepless nights are a great time to pray…or read…or play electronic games. Yes, I’ve fallen prey to a few of those addicting timestealers and I’m not proud of it! But I won’t deny it either. Soooo, I reel it in some when guilt strikes, making sure that I am praying first, reading my Bible (love the iPad app) and eBooks these days…a good inspirational memoir, historical non-fiction and even fiction that ends up teaching me something of value. You may wonder when does she ever do anything productive? Well, my husband and sons have always done much to help keep the house in order and take care of the dogs.  I feel very accomplished when I’m able to go to the store and help with the shopping, even drive sometimes, organize and manage a load or two of laundry, fix a meal or snack for myself and load my dishes into the dishwasher, clean my own bathroom sink occasionally and shower and dress myself! That is because a few short years ago I could not do those things! I’m so grateful to God for improved health in many ways and for alternative methods of healing that treat the causes and not just symptoms, allowing dis-ease to go in reverse rather than progress. (This is called wellness, not sickness, and refers to non-emergency conditions.)

So what did any of this have to do with popcorn, geez!? Not sure myself, but just maybe, or hopefully, it has prompted someone to consider taking life less seriously and methodically. (a few of my friends know that I had to come down a few notches back when I thought a spotless and tidy home were important) Perhaps someone will feel more relaxed in dealing with what life brings each day, no matter what day of the week.  Because pain will come in some form or another to all of us eventually.  Trust Jesus, giving him your messes.

And by all means, have popcorn…whenever. Even for breakfast!

I hope to see y’all treadin’ on high places with me! (Habakkuk 3:19)

Kim Newsome

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new lease….on life and a home

A lot has happened…and changed since my last blog post. Almost a year later and where to begin. Okay this entry will not even try to get us all caught up. I say us all because this blog is just as much for me (and my kids and grandchildren who may read it one day) as for any one out there who stumbles on it and shares a few moments of your own precious time with me and my thoughts.

So my new leases are… as a result of moving three states north (a home lease), which just has a ‘new lease on life’ feel to it. I have commented to a few friends that it feels like a ‘working’ vacation. Our home is comfy and cozy, surrounded by breathtaking mountain views, more than I imagined it would be. So much to be grateful for…and I am that!

There are so many facets to my life right now that beg to be unscrambled from these letters under the fingers on my keyboard…to blog posts and ultimately a very old and often forgotten partially written book manuscript. The writer in me has lain dormant for way too long. Things that I’ve been commissioned to do and say have been shelved in my heart and mind. And now I admit that it’s been a bit painful at times. Cuz it hurts…to let someone down. I’ve let myself down.

But wait. Despite this most recent bout of procrastination in my life, I am happy to report a major accomplishment a few months ago. Fourteen years ago I wrote a book (after starting the other one mentioned above). It is a true story. It is heart wrenching at times yet full of faith and proof of my faithful God. Innocent…yet 5 1/2 months till Freedom is now published as a paperback and available as an ebook.

So I challenge myself to be more productive (getting settled into a new home around the holidays and entertaining five additional guests – mostly teens – Christmas week doesn’t count!) as inspiration nudges my brain and fingers. Thank the Lord that laptops have replaced parchment, feather quill and ink!

Until next time…keep on treadin’ on high…places.  (Habakkuk 3:19)

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Even Numbers

A few nights ago while in that dream-like state where you’re not quite sure if you’re asleep or awake,  I really wanted to get my computer and start pounding out my thoughts.  The sleepy mind was willing but my body was not.  So as many times before, I hoped and prayed that it would come back to me during my more productive hours of the day.

One thing that stands out in my memory is that the title was going to be Even Numbers.  It had to do with the significance of even numbers in our lives.  The thought that came to me was that throughout our lives, the numbers that have the most impact on us and that cause us to reflect are the even numbers!  How often have you heard of someone turning 23 and there was a big deal made of it?  Birthday cards with hysterical comments about that age?  No, I don’t think so.  But turn 30, 40 or 50 and you can expect surprise parties and jokes all day long.  The same goes with anniversaries.

In fact, my thoughts began with the fact that next month marks 20 years since I met my husband.  In June we’ll celebrate 20 years of marriage.  Lately I find myself thinking ‘in the 20 years since I’ve met Kevin, …’.  The rest of the sentence doesn’t matter.  It’s the fact that it’s an even number.  I wasn’t having those reflections at year 17.  Twenty years is a significant amount of time!  It’s like a milestone, especially since many marriages don’t last more than 10 years anymore.

Whatever God was trying to say is still not real clear.  I’d hoped it would come as I committed to sharing these thoughts.  Sometimes when I write, things just come as I make those first strikes on the keyboard…that step of faith.  Maybe this numbers game will all look kind of silly on the page.  All I know is that I’m seeking more and more every day for God to show me things, to allow me to hear him more clearly than I ever have.  And he’s led me to find some of the best books on the subject of Heaven and dying….and prayer.

My friend, Lisa, just lost her 20 year old daughter, Jenny –  to this world as we know it.  I added that because we know where she is.  She’s not lost!  I guess I’m not liking that phrase anymore.   Jenny was  a very special young lady in my life.  Lisa and I are both fascinated with the subject of ‘passing through that veil’ to the other side.  And I think we all very well should be!  Every one of us will come to that place, some sooner than later.  I’m excited about it, really.  Yes, there are things I’d still like to do while here with my family – things we’ve always wanted to do but haven’t yet.  And I get extremely sad when I think of my present family unit changing in any way, yet I know that it will some day.  But God has placed Eternity in our hearts; the void that is there inside all of us was placed there by him.  That is because he wants to be with us forever.  He wants us to love him like he first loved us.  Much the same way we want our own children to love us like we first fell in love with them the moment they came into our arms!  When we nurture our children there is a bond that is not easily broken.  Likewise when we allow God to nurture us, through our relationship with Jesus, and the help of the Holy Spirit, our Comforter and Guide, there, too, is created a bond that is not easily broken.

Seems like I’m way off the track of even numbers!  Well, that’s what happens when one thought leads to another.  I had no idea where this was going when I opened my laptop tonight.   During the seasons of my life when I commit to seek him more, seemingly crazy dreams and visions do happen.  The Bible tells us that if we seek him we will find him.  And lately I have shared my thoughts with a couple of friends of how we tend to look for God’s answers while keeping him in a box.  God wants out of the box!  Jesus always dealt with people with out of the box thinking.  How often did he ever heal people the same way twice?  He created us all differently and I see him dealing with each of us according to our personality and in ways that he knows that we’ll respond.  I love to put my thoughts on paper, and he’s always encouraged me to write them down.  As long as I’m obedient to that, it just flows…and then more thoughts come.  So there I have just gone on another thoughtful tangent.  Just maybe a few words here will help someone who reads this.  That’s my hope and prayer.  It encourages me just spending time with him, whether I’m awake…or half asleep.  Goodnight, friends.  Sweet dreams and visions…

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Day of Reflection

Honestly, when I first woke up and still in my morning fog, I’d forgotten it was ‘Good’ Friday…till I checked into Facebook and friends had shared so many great scriptures, thoughts and prayers of what our Lord and Savior Jesus Christ has done for us. Hear that? ALREADY done for each of us…long, long before our earthly grandparents were even thought about or born! How can we imagine this? We can’t! Oh, but I love to just sit and ponder the things of God and how one day He will reveal all of these mysteries and all of these questions will be answered! Of which I have so many….it seems I have more every day! I just can’t wait!

So it’s a good day to reflect, wonder and ponder….I’ve spent my morning looking at old documents on my computer, (like Jordan’s school papers from two years ago) and I came across some thoughts I put down back in 2011. Today is not Wednesday, but I’d like to share what I was thinking back then:

‘God is God and I am not. Lessons re-learned, knowledge and understanding revealed, increased wisdom…and it’s only Wednesday! Such a week! I am so blessed and yet I am a very good sinner. But I serve an Awesome God Who loves me and has orchestrated all of my daily devotionals, my book reading and Pastor’s teaching to be just what I needed this very week in my life. I’m convinced that He knew all of this before I was conceived!

This is not a new concept…He has done this for me many times before. But when I seek for truth and I ask God for specific answers (as I have been doing these past several days) AND I keep my spiritual, as well as physical, eyes and ears open…He is so extremely faithful! Love that ‘mouth gaping’ kind of awe!

My God knows how to lovingly and gently knock me upside the head when I need it, leaving me feeling cared for and humiliatingly reprimanded at the same time – brings me to joyful and repentant tears!’

I’m almost sure those thoughts have applied many Wednesdays since then and I pray they continue to as long as I live. And may every Friday….and every other day of the week….be Good and be reminders to us all of what He’s already done for us! He is greatly to be praised!

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a wrestling match I want to lose

Last night I slept…so Valerian served me well!  Moaning came only with movement, changing positions.  Guess I’ll take that stinky smelling herb more often!

All morning it’s been rough; I’m not gonna lie.  I’ve been wrestling again, with God.  And He’s been an awesome partner, as always.  In the physical sport of wrestling it is recommended that you choose a partner who is better than you – someone you can learn from. But that’s where the similarity ends, except maybe for the give and take part.  I’ve been giving a lot to Him lately….like countless tears!  And the comfort, peace and strength that only He can give…I am taking!

Since my life lately seems to have become consumed with navigating a course of action through this maze of muscle loss, joint pain, chronic fatigue and a few other fun physical ailments, I don’t always feel like blogging or sharing how I tread my path.  I want to – it’s why I started this blog – but some days my fingers won’t work the keyboard. On the days that they do work, it hurts and then makes them even worse.  But I know that there is a purpose to all of this or He would not be allowing it.  Oh, I still strive every day to ‘fix’ me.  It is my nature to seek answers, question what I’ve done wrong to exacerbate my condition today, try a little extra of this herb or less of that food.  But at the end of the day, or the middle of the night, or when I can’t move first thing in the morning without help….it all comes down to crying out, sometimes wrestling with my Lord.  Looking for that loss that leads to a win!

Often I have referred to my struggles and crying out to God as ‘wrestling’ with Him.  And it reminds me of Jacob’s famous wrestling match with (a man) according to Genesis 32: 24-31.  Some believe it was an angel, Jesus, or God, that he wrestled with that night. Alone in his camp, afraid that his brother, Esau, was coming to attack him. Just prior to that match Jacob got real with his Lord and acknowledged Him as the father of Abraham and Isaac. He then admitted his fears and he reminded God of His promises to him – the promise to prosper him and make his descendants like the sand of the sea (see Gen 32: 9-12).

As much as the process may hurt, I want to gain a blessing like Jacob did.  Jacob faced God in truth, was humbled, was blessed and received the answer to his prayer.  As he limped away with an injured and painful hip, totally dependent on and trusting God to fight his battle, he was blessed!  His meeting with Esau went much better than he expected (they hugged and cried!).  And God renamed him Israel because he ‘struggled with God and men and overcame’.  Way to suffer a loss in order to win!

I, too, have been blessed as my day goes on….through songs of worship, words I read in scripture, books, articles, even texts and messages from friends.  I’m walking kind of slow and though it’s not my hip, I’ll take the pain as long as God wills it.

Our one-month-old baby granddaughter, and family, is coming to visit this evening.  I had prayed and hoped, since the day we knew she was on the way, that I’d be able to pick her up and rock her in my arms.  Today I will sit down and someone will place her in my lap, where I can gaze into her eyes and touch her and talk to her.  I will not dwell on what I can’t do, but be thankful that I was here to see the miracle of her, just moments after she was born.  Yes, I have pushed the envelope and ‘held’ her a couple of times, even lifted her for a moment with all the strength I could muster (hey, I just wanted to soooo badly)….but then paid dearly for it, later.

Sometimes it’s best to sit back and enjoy the blessings God sends our way, in the exact way He sends them!

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